Re: MD Schiavo

From: Arlo J. Bensinger (ajb102@psu.edu)
Date: Mon Apr 04 2005 - 14:40:16 BST

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    Platt,

    > Anyone who has had to
    > helplessly watch a loved one take her last breath knows the agony of the
    > question of whether, in the absence of the person's wishes, it's OK for
    > parents and the spouse, by agreement, to pull the plug. If you have some
    > thoughts, I'd appreciate them.

    Like you, I've been struggling with making sense of all this. What I've come to
    over the past few days is that the complexity is that there are three
    components to all this that get tangled up in the dialogue. But I'm only
    thinking out loud here, not making any sort of definitive statements...

    There is the question of "death with dignity". The heart of this component has
    at its core the morality of allowing even those *with* legal documents to be
    allowed to die. In cases where there is ambiguity, or an absense of known
    wishes, it extends to *who* should be allowed to decide? In this case, truly
    "pro-life" voices were combatting the concept of euthenasia or death with
    dignity "in toto". Others, giving voice next to these, were dealing with the
    "who decides when the patient hasn't". Most of these people, I'm gonna guess,
    were outraged that the parents had no voice in this decision. This is, it seems
    to me, a more abstracted or universal level of dialogue.

    Then there is the component that enters the picture when you take a step back
    and look at the Schiavo family personally. This situation was akin to a Greek
    tragedy polarized by a husband, who had at best lost hope and at worst wanted
    too much for his wife to die, and a family, who at best seemed unable to "let
    go" and at worst seemed to care more about protecting their feelings than
    considering Ms. Shiavo's. This level of dialogue gets "soap operish" and
    relates more to the people surrounding this case than the more abstract ideas
    above.

    Finally, there is the media/politicization component. Here there is dialogue
    between those arguing it is intrusive for the government to get involved in
    cases like this, and those who see this specific situation and believe the
    system to have collapsed. There is also the dialogue of the obvious use of this
    to advance political careers. As for the media component, many are outraged
    that such a personally painful time was exploited, but many more acted as
    "consumers" and bought everything the media doled out.

    Anyways, I think talking about it has been difficult because these components
    tend to get mixed. This is somewhat evidenced by the array of comments on this
    thread. In many ways, these situations are intensely personal. In other ways,
    they are part of the abstract dialogue about euthenasia and the "right to die".
    And in still other ways, they are about social/political policy. And in the
    end, this situation seemed to fail all three.

    As for where I am on this *right now*, I think that if the individual's wishes
    were to be allowed to die, then I think we must respect that, as the individual
    must outweigh the social. In the absense of the individual's wishes, then I
    think we should, as Bush said (I can't believe I just said that), "presume
    life". That is, even if the spouse *and* the family wanted to pull the plug,
    the individual should be kept alive. But the cost and the burden of this should
    be carried by society, and we as a society should agree that bearing this
    burden is "right". In some ways, I think we should mandate "living wills", to
    minimize ambiguous or unknown cases.

    As to the specifics of the Schiavo situation, I can't understand why, given the
    desire and willingness of the family to support their daughter's care, the
    husband wouldn't "sign off" on the whole thing, be allowed to get his divorce,
    and have his financial ties severed. That would have, to me, been the "best"
    outcome of this debacle. That it did not happen, is to me, very, very, very
    sad.

    Arlo

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